Chemo went without a hitch today even though we didn't know if I was able to have it. Let me back up a bit. Last Thursday on December 23 I had the usual pre chemo blood work and then an appointment with the doctor. They were running way behind due to Christmas but I don't mind so much usually but I was feeling pretty rough due to surgery and just wanted to go home to my couch and blankie.
Doctor informed me that my liver functions were not up to par and I may not be able to get the chemo treatment on December 28. We discussed the situation and decided the best route was to come in anyway and get more blood work done to determine if the liver functioning had improved enough for me to accept at least 75 % of the normal dose. If not, I would be sent home and retry next week.
Then there was the question of my staples. I was hoping they could remove them but with their delays that was out of the question. They suggested I try my family doctor. This worked out and she saw me the very next day on Christmas Eve after the office was closed at noon. Her receptionist had already left. I was quite surprised she would see me but she is very kind hearted. In about 1/2 hour she removed about 30 staples. I bet you are feeling some shivers in your belly.... :)
Well today my blood work showed almost normal liver functioning so I was cleared to get 100% dosage. Long day though.... we weren't home until 4:30 pm.
Tuesday, December 28, 2010
The Holidays
Hope everyone had some great holidays! We spent time at my Mom and Dad's on Christmas Eve as is the yearly tradition. Calamari and seafood soup are our traditional dishes. Ham, Pat's potato casserole and David's vegee melange rounded out the meal. For dessert we had an assortment of Christmas cookies and fruit.
We had a different crowd this year. David's Mom and Dad were there as well as Suzanne's Mom - Phyllis. My Uncle Marty and Aunt Ginger were not able to make it due to sickness. Aunt Ginger was not feeling well and thought it best not to attend on my account. I am appreciative of this and missed them too!
We had a different crowd this year. David's Mom and Dad were there as well as Suzanne's Mom - Phyllis. My Uncle Marty and Aunt Ginger were not able to make it due to sickness. Aunt Ginger was not feeling well and thought it best not to attend on my account. I am appreciative of this and missed them too!
One of our newer traditions consists of having a secret Santa draw. The gifts must be purchased from the dollar store. We do not exchange gifts anymore between the adults. We think it is more important to get together and spend some time. Back to the draw..... this is an enjoyable game and it is amazing what people can find at the dollar store.
Here are some pictures but I warn you they are kind of lame. We are not great picture takers.
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| Suzanne, David and Pat |
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| Dad, David and half of Mom's head |
By this time it was nearly time to go home. I was pretty exhausted. It was only one week since surgery.....but I had a lovely time. Next year I will be hosting Christmas Eve, God willing!
The next day we headed back to my Mom's place to have our traditional ravioli lunch. Homemade that is..... they very enjoyable. After a couple of hours we headed home to rest, at least I did as were expected at George and Helen's for 4:00 ish. All the gang was there - Elaine and her girls, Amanda and Katrina, Andrew and his daughter Mackenzie and Andrew's girlfriend Becky and her daughter Logan. Of course David's parents -George and Helen. This year they were gracious enough to host Christmas dinner which is much appreciated by us. Next year it will be at our house!
Dinner was a traditional Christmas dinner with turkey and the fixin's complete with Christmas cracker. Afterward we were treated with a huge amount of desserts. Couldn't try them all but they were great! The evening was lovely!
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| Corina and Dylan |
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| Hamish and Helen |
Wednesday, December 22, 2010
Post Surgery
I have been home from hospital for 2 days now. I spent 4 days there and am very glad to be home. All went well. Surgery was a little more than 3 hours and I spent another 3 or 4 in recovery. I guess I didn't want to wake up too quickly! Poor David was waiting all this time and he could not see me. The next morning the surgical residents made their rounds. They look like high school students! Anyway.... both ovaries were enlarged and had evidence of cancer. The uterus had some cancer as well on the underside. Other than that there was little other cancer on the peritoneum or omentum. That was all removed as well.
So now it's recovery time and it's almost Christmas! I am not much help in this department but David has it under control.
Have a great holiday!
So now it's recovery time and it's almost Christmas! I am not much help in this department but David has it under control.
Have a great holiday!
Thursday, December 16, 2010
Bye Bye cancer... don't let the door hit you on the way out....
Finally.. the day of surgery. Can't sleep any longer. I have been worried about the weather for a week since the postponement. Hasn't this been a crazy time! London has received 122 cm of snow in December so far. They usually get about 50. The last time they had this much snow was 1977. And what about highway 402 with the stranded motorists. Unbelieveable!
Best get ready now. Don't want to be late. Must not forget...no food, no drink..... Talk soon!
Best get ready now. Don't want to be late. Must not forget...no food, no drink..... Talk soon!
Tuesday, December 7, 2010
Delay in Surgery
Well..... many of you live in southwestern Ontario and know that the London area is experiencing atrocious weather. We were worried about getting there for 6:30 am Wednesday morning and thought about leaving this evening and getting a hotel room. As it is the hospital called this afternoon while I was at my mother's making Italian style biscotti. Surgery has been postponed to next Thursday, December 16th. What a relief not to think about driving in this storm!
Monday, December 6, 2010
Busy Weekend
Yoga as usual on Saturday morning. This is the last session until after surgery probably until January before I will be able to go back.
Uncle Marty and Aunt Ginger dropped in on Saturday afternoon to drop off a truckload of soup and massive amounts of Christmas baking! They could only stay for 10 minutes as they were on their way to a Christmas gathering with Aunt Ginger's family. We really appreciate this!
Right after this we headed down to George and Helen's place in Cambridge to visit with David's family. Elaine and the girls were visiting from Toronto and Andrew and Mackenzie were there as well. We passed a few enjoyable hours before heading back home. I guess the next time we see them will be at Christmas time. I can't believe it is only a few weeks away!
On Sunday my parents had a household full of visitors. My Aunt Natalina and my cousins Dario and his wife Laurel, Ernie and his wife Franca, Gina, and John. I haven't seen my aunt and cousins in over a year so it was great to spend some time visiting. Dario and Laurel live in New Liskeard which is about 6 hours north so needless to say he doesn't get down to southern Ontario very often. Gina is in Minden, which is also quite a drive, 3 - 4 hours I believe. John lives downtown Toronto and as I expect doesn't own a car. I think it was a great effort to coordinate everyone to get to Waterloo for lunch! We had a fabulous time!
Uncle Marty and Aunt Ginger dropped in on Saturday afternoon to drop off a truckload of soup and massive amounts of Christmas baking! They could only stay for 10 minutes as they were on their way to a Christmas gathering with Aunt Ginger's family. We really appreciate this!
Right after this we headed down to George and Helen's place in Cambridge to visit with David's family. Elaine and the girls were visiting from Toronto and Andrew and Mackenzie were there as well. We passed a few enjoyable hours before heading back home. I guess the next time we see them will be at Christmas time. I can't believe it is only a few weeks away!
On Sunday my parents had a household full of visitors. My Aunt Natalina and my cousins Dario and his wife Laurel, Ernie and his wife Franca, Gina, and John. I haven't seen my aunt and cousins in over a year so it was great to spend some time visiting. Dario and Laurel live in New Liskeard which is about 6 hours north so needless to say he doesn't get down to southern Ontario very often. Gina is in Minden, which is also quite a drive, 3 - 4 hours I believe. John lives downtown Toronto and as I expect doesn't own a car. I think it was a great effort to coordinate everyone to get to Waterloo for lunch! We had a fabulous time!
Sunday, December 5, 2010
Company Christmas Party
On Friday night David and I attended the Cowan Christmas Party (that's where I work). Katherine and Cam graciously came and picked us up. We had the usual turkey and roast beef dinner but it was great to great to get dressed up and see everyone!
Friday, December 3, 2010
Book Club
We met on Thursday night instead of Friday this month to discuss our latest read - 'What They Wanted' by Donna Morrissey. Great book which details the harshness of life in Newfoundland and Alberta in the late 70's and early 80's. (if you check the tab 'Books I've Read' you will find a link to this book.)
It is very enjoyable getting together with women occasionally to talk and have a few laughs. The food and drink doesn't hurt either.
On my way out Jill presented me with some of her great Christmas baking. She attended a cookie baking class and made some beautiful cookies. So we get to share her treats and I hope to save some to share with family. Thanks Jill!
It is very enjoyable getting together with women occasionally to talk and have a few laughs. The food and drink doesn't hurt either.
On my way out Jill presented me with some of her great Christmas baking. She attended a cookie baking class and made some beautiful cookies. So we get to share her treats and I hope to save some to share with family. Thanks Jill!
Thursday, December 2, 2010
Pre-Admission Appointment - December 1st
An indicator on the dashboard of our car had started flashing the day before our trip to London and so David checked the pressure in the tires. Lo and behold the pressure was low in all tires. No matter.... before hitting the highway we would stop and put some air in the tires. On Wednesday morning we started out for London around 8:00 a.m. for a 9:30 a.m. appointment. We stopped at the closest gas station just down the road from our house. NO AIR.... Can you believe this? Well .... expletives were pouring out of David! I am sitting quietly agreeing with him. On we went and stopped at another station just before hitting the 401. The air machine needed 50 cents to operate. Guess what! Neither of us had any change or money! More expletives.... On to the 401 and we stopped at the first exit at a truck stop. Surely they have free air. Their air machine needed $1.00 to operate! Let me tell you the air in our car was quite blue. I wasn't saying anything. David was expressing it all for the both of us..... He finally went searching for a cash machine and came back with the appropriate amount and got that machine running. Adding insult to injury he had to also reposition the car to get at one of the back tires. He was very frustrated by this point but we were finally on our way and flying down the 401 toward London. We laughed about it later on but at the time...... Can you imagine one of your kids doing this? I can just imagine how we would reprimand them for not being more proactive in attending to the tire pressure before the trip! We arrived with 5 minutes to spare.... no biggy.... :)
The appointment was with a nurse who reviewed my medical history and my understanding of the procedure. She explained all the particulars concerning preparation for surgery, pain management (read drugs) and after the operation. All the usual stuff. All set for next week.
The appointment was with a nurse who reviewed my medical history and my understanding of the procedure. She explained all the particulars concerning preparation for surgery, pain management (read drugs) and after the operation. All the usual stuff. All set for next week.
Saturday, November 27, 2010
Week of November 22nd
It has been a while since I posted!
David and I have completed 4 weeks of the 6 week program of 'The Healing Journey' at HopeSpring. I must admit that when we started I thought it might a bit too 'new age' for us but it has turned out to be very good and helpful in calming our minds. So much of cancer is about the medical aspects which is absolutely necessary. But is it so much more when we can learn how our emotions and our mental state can affect our bodies. The relaxation exercises are key to the program and I have provided a link to the audio that we are using in the program. They are public and anyone can learn to quiet the mind in times of stress and anxiety.
One of the programs available to cancer patients in our community is the UW Well-Fit. This is a 12 week exercise program to help people with cancer to minimize the aspects of treatment and improve quality of life. On Tuesday I went for my assessment. This assessment determines a baseline of my fitness levels upon which a program is built. During this consultation UW Fitness staff determine cardiovascular fitness by monitoring the heart rate and blood pressure response to progressive exercise on a stationary bike. Shoulder range of motion is assessed during this consultation, as well as height, weight and waist circumference. Since there is a growing interest in the benefits of exercise for cancer patients, participants are asked to complete a quality of life survey as part of on-going research at the University of Waterloo. The initial "12 Week" program runs 2 times per week with each session lasting one hour. The best part is that it is free to participants. The program is funded by UW Fitness, Grand River Regional Cancer Center and charitable donations.
My first exercise session was on Thursday morning. Each participant in the program works with an instructor so it is like having a personal trainer. Each exercise is demonstrated and then they watch that I do it correctly. During that first morning there were only 3 participants and 3 instructors. Most sessions have only 5 or 6 participants at a time for maximum supervision and attention. This is a fabulous program and I have never felt this much attention at a gym. Most of us I'm sure are members of a fitness facility and you are pretty much on your own. If you want individual attention then personal trainers are available but at a hefty cost. The thing I have learned is to insist on a properly trained person. They should have a degree in kinesiology and certified in personal training. This is not stressed enough at most fitness centres, I think.
I am very thankful for these programs that are available to me and other cancer patients. They help me to get out and meet others who are in a similar situation. We support each other and understand what is happening. Some of you that may have experienced cancer in yourself or in someone close to you and may know that people don't always know how to relate to someone with cancer. I know from other cancer patients that this is sometimes the case. It is the lack of understanding on the part of others that do not know what to say or what to do. I am fortunate that most of the people around me are very supportive and understanding. Most people do not hesitate to keep in touch and provide much encouragement and strength. Even just by reading this blog you are there for me! Thank you very much!
David and I have completed 4 weeks of the 6 week program of 'The Healing Journey' at HopeSpring. I must admit that when we started I thought it might a bit too 'new age' for us but it has turned out to be very good and helpful in calming our minds. So much of cancer is about the medical aspects which is absolutely necessary. But is it so much more when we can learn how our emotions and our mental state can affect our bodies. The relaxation exercises are key to the program and I have provided a link to the audio that we are using in the program. They are public and anyone can learn to quiet the mind in times of stress and anxiety.
One of the programs available to cancer patients in our community is the UW Well-Fit. This is a 12 week exercise program to help people with cancer to minimize the aspects of treatment and improve quality of life. On Tuesday I went for my assessment. This assessment determines a baseline of my fitness levels upon which a program is built. During this consultation UW Fitness staff determine cardiovascular fitness by monitoring the heart rate and blood pressure response to progressive exercise on a stationary bike. Shoulder range of motion is assessed during this consultation, as well as height, weight and waist circumference. Since there is a growing interest in the benefits of exercise for cancer patients, participants are asked to complete a quality of life survey as part of on-going research at the University of Waterloo. The initial "12 Week" program runs 2 times per week with each session lasting one hour. The best part is that it is free to participants. The program is funded by UW Fitness, Grand River Regional Cancer Center and charitable donations.
My first exercise session was on Thursday morning. Each participant in the program works with an instructor so it is like having a personal trainer. Each exercise is demonstrated and then they watch that I do it correctly. During that first morning there were only 3 participants and 3 instructors. Most sessions have only 5 or 6 participants at a time for maximum supervision and attention. This is a fabulous program and I have never felt this much attention at a gym. Most of us I'm sure are members of a fitness facility and you are pretty much on your own. If you want individual attention then personal trainers are available but at a hefty cost. The thing I have learned is to insist on a properly trained person. They should have a degree in kinesiology and certified in personal training. This is not stressed enough at most fitness centres, I think.
I am very thankful for these programs that are available to me and other cancer patients. They help me to get out and meet others who are in a similar situation. We support each other and understand what is happening. Some of you that may have experienced cancer in yourself or in someone close to you and may know that people don't always know how to relate to someone with cancer. I know from other cancer patients that this is sometimes the case. It is the lack of understanding on the part of others that do not know what to say or what to do. I am fortunate that most of the people around me are very supportive and understanding. Most people do not hesitate to keep in touch and provide much encouragement and strength. Even just by reading this blog you are there for me! Thank you very much!
Wednesday, November 17, 2010
3rd Chemo Session
On Friday November 12th we went to hospital for the last round of chemo before my surgery which is scheduled for December 8th in London. Dylan accompanied us as well so he missed a couple of periods of school that day. He wanted to see what happens in chemotherapy. I am sure it was mostly boring for him but it is now less mysterious.
I am given a cocktail of drugs before the actual chemo and they make me quite drowsy. I will sleep for short periods and then wake up a bit groggy and incoherent. At one point I had been dreaming and woke up laughing about something. Dylan found this quite amusing.
Since chemo I have been feeling the usual flu like symptoms but I also have been prescribed a higher dosage of Gabapentin to relieve the inevitable pain in the leg muscles and joints. It seems to be working. Doctor also suggested Ibuprofen and as a back up a prescription of Tylenol 3 just in case.
On November 16th I went to hospital for a CT Scan. This is in preparation of the surgery. What a zoo. They were backed up due to emergencies so the wait was excruciating. I wasn't feeling well due to chemo and for CT Scan you must drink 2 big glasses of contrasting liquid in one hour. To me it tastes like pool water. They certainly don't dress it up or anything. At least at St. Mary's hospital it was a flavoured smoothie that was at least drinkable. They also inject iodine via an IV during the procedure. While in the apparatus this gives you a metal taste in your mouth (which I already have), makes you feel hot and you feel like you are peeing yourself (which you are not). Eventually it was all over - actual scan procedure takes only 5 minutes. The whole thing was 3 1/2 hours and I was finally out of there. One final comment.... the nurses who were very busy did a great job of getting patients organized and ready for procedure while being very gracious and conscious of the delays. They did they best to hurry things along. It is a difficult job.
I am given a cocktail of drugs before the actual chemo and they make me quite drowsy. I will sleep for short periods and then wake up a bit groggy and incoherent. At one point I had been dreaming and woke up laughing about something. Dylan found this quite amusing.
Since chemo I have been feeling the usual flu like symptoms but I also have been prescribed a higher dosage of Gabapentin to relieve the inevitable pain in the leg muscles and joints. It seems to be working. Doctor also suggested Ibuprofen and as a back up a prescription of Tylenol 3 just in case.
On November 16th I went to hospital for a CT Scan. This is in preparation of the surgery. What a zoo. They were backed up due to emergencies so the wait was excruciating. I wasn't feeling well due to chemo and for CT Scan you must drink 2 big glasses of contrasting liquid in one hour. To me it tastes like pool water. They certainly don't dress it up or anything. At least at St. Mary's hospital it was a flavoured smoothie that was at least drinkable. They also inject iodine via an IV during the procedure. While in the apparatus this gives you a metal taste in your mouth (which I already have), makes you feel hot and you feel like you are peeing yourself (which you are not). Eventually it was all over - actual scan procedure takes only 5 minutes. The whole thing was 3 1/2 hours and I was finally out of there. One final comment.... the nurses who were very busy did a great job of getting patients organized and ready for procedure while being very gracious and conscious of the delays. They did they best to hurry things along. It is a difficult job.
Sunday, November 14, 2010
Franca's Visit
It was great to see Franca and John this week. This is a long entry so grab a drink.
Monday was a lounge day for them and David and I went to HopeSpring in the afternoon for our Healing Journey workshop # 2.
On Tuesday Franca, Mom and I did some shopping and visited some stores at a local plaza. Walmart was of interest to Franca because there is not a single one NYC. Did you know that? It's not for lack of trying, I suppose, but it hasn't happened.... yet. Franca believes they might get one in Brooklyn sometime soon. Anyway, she wanted to find a particular jacket for John that they purchased in Canada several years ago. Can you imagine they could not find it? And our local Walmarts do not carry a wide selection of 'big and tall' sizes that would be appropriate for John.
Another shop that they love is the 'Dollarama'. I love it too. There are plenty of 'dollar' stores in Queens where they live but none as clean and organized as 'Dollarama'. Too funny!
Another shopping experience that Franca loves is the 'Bulk Barn'! This is because it is the only place she can find Dino Sours. I didn't know what they were. It's sour candy.
We hit a few other spots but I can't remember.....chemo brain...
That evening we feasted on homemade lasagna at Mom's house. An added bonus was that Pat and Suzanne were there as well. It was great to have the whole family. It doesn't happen often enough. Pat and Suzanne are in their new house living on the top level while renovations are being done on the first floor. They are in a fully contained apartment so they have all the conveniences but have only unpacked what they absolutely require. Renos which were supposed to be completed by October will probably not be finished by Christmas. Home renovations seem to take longer than expected, don't they? Some of you know what I am talking about.....right?
Franca, John and I went to Fairview Mall on Saturday for some more shopping. My main reason for going was to visit the wig shop at The Bay. And for those of you who thought I should get a blond wig.... well this did not happen. I look terrible. Tried on many colours and many styles but nothing was as nice as the one I already have. Very disappointing. I am going to try another shop another time but I won't have Franca's eye. I may have to text her a picture while I am in the shop!
Most important part of the shopping trip for Franca was stopping at a Harvey's for hamburgers. Again, there aren't any in NYC so she could satisfy her craving. This was a success!
On Thursday we visited the St. Jacob's market and John was drooling over all the meat for sale by the various butchers. Unfortunately, they were leaving on Friday morning and couldn't buy any for consumption and they certainly wouldn't be able to take it back to NYC. This place is huge and I hadn't up to now visited the whole thing. For us locals, it's a case of rushing to our favourite vendors, make our purchases and dashing out. It is a zoo, especially on a Saturday in summer/fall. This is the tourist stop for Kitchener/Waterloo.
Besides the food vendors there are loads of vendors that sell all kinds of stuff. There are jewelery artisans, ceramics, leather good, gadgets, kitchen wares, etc. Franca did manage to buy socks for John! I couldn't convince her to buy a leather fringed cowboy jacket or a slab of a tree with a carving of the wolf or something. A lot of interesting/useless do dads for sale. We walked through a corridor to get to a furniture place and happened upon the livestock auctions. We could not actually go inside due to bio-security regulations but you could sure appreciate the aroma. This was a little much for our city boy, John. Ok... I had to put my scarf over my nose. I blame this on my delicate sense of smell these days.....
Dinner was at our house the last evening of their visit. Aunt Ginger and Uncle Marty dropped in for dessert and coffee and we had a nice visit. All too soon it was time to say good bye to Franca and John. They left very early on Friday morning to get back to Goshen, NY where John's son Peter lives so they could visit. Hope we see you soon!
Monday was a lounge day for them and David and I went to HopeSpring in the afternoon for our Healing Journey workshop # 2.
On Tuesday Franca, Mom and I did some shopping and visited some stores at a local plaza. Walmart was of interest to Franca because there is not a single one NYC. Did you know that? It's not for lack of trying, I suppose, but it hasn't happened.... yet. Franca believes they might get one in Brooklyn sometime soon. Anyway, she wanted to find a particular jacket for John that they purchased in Canada several years ago. Can you imagine they could not find it? And our local Walmarts do not carry a wide selection of 'big and tall' sizes that would be appropriate for John.
Another shop that they love is the 'Dollarama'. I love it too. There are plenty of 'dollar' stores in Queens where they live but none as clean and organized as 'Dollarama'. Too funny!
Another shopping experience that Franca loves is the 'Bulk Barn'! This is because it is the only place she can find Dino Sours. I didn't know what they were. It's sour candy.
We hit a few other spots but I can't remember.....chemo brain...
That evening we feasted on homemade lasagna at Mom's house. An added bonus was that Pat and Suzanne were there as well. It was great to have the whole family. It doesn't happen often enough. Pat and Suzanne are in their new house living on the top level while renovations are being done on the first floor. They are in a fully contained apartment so they have all the conveniences but have only unpacked what they absolutely require. Renos which were supposed to be completed by October will probably not be finished by Christmas. Home renovations seem to take longer than expected, don't they? Some of you know what I am talking about.....right?
Franca, John and I went to Fairview Mall on Saturday for some more shopping. My main reason for going was to visit the wig shop at The Bay. And for those of you who thought I should get a blond wig.... well this did not happen. I look terrible. Tried on many colours and many styles but nothing was as nice as the one I already have. Very disappointing. I am going to try another shop another time but I won't have Franca's eye. I may have to text her a picture while I am in the shop!
Most important part of the shopping trip for Franca was stopping at a Harvey's for hamburgers. Again, there aren't any in NYC so she could satisfy her craving. This was a success!
Besides the food vendors there are loads of vendors that sell all kinds of stuff. There are jewelery artisans, ceramics, leather good, gadgets, kitchen wares, etc. Franca did manage to buy socks for John! I couldn't convince her to buy a leather fringed cowboy jacket or a slab of a tree with a carving of the wolf or something. A lot of interesting/useless do dads for sale. We walked through a corridor to get to a furniture place and happened upon the livestock auctions. We could not actually go inside due to bio-security regulations but you could sure appreciate the aroma. This was a little much for our city boy, John. Ok... I had to put my scarf over my nose. I blame this on my delicate sense of smell these days.....
Dinner was at our house the last evening of their visit. Aunt Ginger and Uncle Marty dropped in for dessert and coffee and we had a nice visit. All too soon it was time to say good bye to Franca and John. They left very early on Friday morning to get back to Goshen, NY where John's son Peter lives so they could visit. Hope we see you soon!
Sunday, November 7, 2010
Weekend November 6th and 7th
Went to Yoga class on Saturday morning. What a great morning! The sun was shining although it was quite cool. I am enjoying this class and although I have done yoga before, this time it is more meaningful for me somehow. It's a small class of usually 8 to 10 women and our instructor is a gentleman in his late 60's, I would guess. The yoga routine focuses on deep breathing, relaxation and gentle moves/holds for the entire body. Out instructor has made a DVD and I think I might buy a copy for my parents.
David and I had a lovely visit from Elaine, Amanda and Katrina on Saturday afternoon. Elaine brought a few books to help me pass the time. Dylan has already picked one up and started reading it.
Franca and John arrived at Mom's house around 9:30 pm on Saturday night. They had a later start but no matter. They arrived safe and sound and we had dinner waiting for them. It's great to see them and we look forward to the next few days. Unfortunately, they have to go next Friday which is my next chemo appointment. Franca had hoped to come to the Chemo Lounge with me but it looks like they will be on the road. No matter we will have plenty of time to do other things together!
On Sunday we had some visitors from Toronto - Lillian and Pino. Since hearing about my condition and that Franca was in town they made the trip to Waterloo for a visit. It was great to see them - it has been several years. Lillian had breast cancer a few years ago so she can relate to my experiences. Sometimes it is helpful to discuss things with someone who has been there.
David and I had a lovely visit from Elaine, Amanda and Katrina on Saturday afternoon. Elaine brought a few books to help me pass the time. Dylan has already picked one up and started reading it.
Franca and John arrived at Mom's house around 9:30 pm on Saturday night. They had a later start but no matter. They arrived safe and sound and we had dinner waiting for them. It's great to see them and we look forward to the next few days. Unfortunately, they have to go next Friday which is my next chemo appointment. Franca had hoped to come to the Chemo Lounge with me but it looks like they will be on the road. No matter we will have plenty of time to do other things together!
On Sunday we had some visitors from Toronto - Lillian and Pino. Since hearing about my condition and that Franca was in town they made the trip to Waterloo for a visit. It was great to see them - it has been several years. Lillian had breast cancer a few years ago so she can relate to my experiences. Sometimes it is helpful to discuss things with someone who has been there.
Saturday, November 6, 2010
Book Club
I belong to a book club that my friend Jill holds at her house every month. I joined earlier this year and the rule is that we only read books written by Canadian authors. This has really expanded my reading experience and I have read books I might not have otherwise. Our meetings are quite casual and we begin in the dining room enjoying the spread of goodies that Jill prepares. We eventually retire to the livingroom to discuss the book and have a great chitchat. It's an enjoyable evening and I have met some great women.
Last night we met and discussed 'Secret Daughter'. It is listed in my book list on my home page. This book was a good read. It is a story about a baby girl who is given up for adoption by a poor family in India in the 80's and is adopted and raised in California by a professional couple. He is an Indian man and she is a white California woman. The story follows the lives of the people who gave her up and the people who raise her. It is a story of contrasts and of similarities and explores the theme of motherhood, family and different cultures.
Last night we met and discussed 'Secret Daughter'. It is listed in my book list on my home page. This book was a good read. It is a story about a baby girl who is given up for adoption by a poor family in India in the 80's and is adopted and raised in California by a professional couple. He is an Indian man and she is a white California woman. The story follows the lives of the people who gave her up and the people who raise her. It is a story of contrasts and of similarities and explores the theme of motherhood, family and different cultures.
Thursday, November 4, 2010
Franca's Coming to Town
As you may have surmised from several comments in my past posts, Franca is coming to Waterloo! John and Franca are driving up from Queens this Saturday. We expect to see them sometime around dinner time Saturday night - give or take several hours. Depends how much sight seeing they take in driving through New York State and any border delays...
They will be in town for about a week and staying with Mom and Dad. In that time we'll have several family dinners, visits with friends, some sight seeing, and some shopping. We talk almost everyday so it will be nice to see Franca in person. Kids are also looking forward to seeing their Aunt Franca. It has been a long time!
They will be in town for about a week and staying with Mom and Dad. In that time we'll have several family dinners, visits with friends, some sight seeing, and some shopping. We talk almost everyday so it will be nice to see Franca in person. Kids are also looking forward to seeing their Aunt Franca. It has been a long time!
Wednesday, November 3, 2010
Appointment in London at Victoria Hospital
Appointment with Dr. Bertrand on Tuesday, November 2nd went very well. She is quite pleased with the results from the first 2 chemo treatments. The tumour is smaller and the ascites is all gone. Did I tell you I can fit into my jeans again? Yay!
We discussed the surgery which is tentatively scheduled for Thursday, December 8th. It will be performed approximately 4 weeks after my 3rd chemo treatment which has, unfortunately, not been scheduled yet. My normal date would have been November 11th but this is Rememberance Day and the Chemo Lounge is closed. So they are rejigging the schedule and I hope to hear that my appointment will be either the 10th or 12th of November.
The surgery consists of a total hysterectomy and removal of the omentum. Sounds extensive and it is.... Here is a link if you are interested in the details.
On the one hand I am very glad to hear that the chemo is doing its job and then on the other hand I am not looking forward to the surgery. But who would be? Best to learn those relaxation techniques and take care of myself to be as strong as physically possible to recover from the surgery.
We discussed the surgery which is tentatively scheduled for Thursday, December 8th. It will be performed approximately 4 weeks after my 3rd chemo treatment which has, unfortunately, not been scheduled yet. My normal date would have been November 11th but this is Rememberance Day and the Chemo Lounge is closed. So they are rejigging the schedule and I hope to hear that my appointment will be either the 10th or 12th of November.
The surgery consists of a total hysterectomy and removal of the omentum. Sounds extensive and it is.... Here is a link if you are interested in the details.
On the one hand I am very glad to hear that the chemo is doing its job and then on the other hand I am not looking forward to the surgery. But who would be? Best to learn those relaxation techniques and take care of myself to be as strong as physically possible to recover from the surgery.
Monday, November 1, 2010
Healing Journey
Today David and I attended the first session of a program offered through Hope Spring. This is a 6 week program for people who want to help themselves as they deal with cancer. The objective is to relieve much of the anxiety and depression, confusion, pain, fatigue and other forms of distress through the use of deep relaxation, using imagery and visualization, goal setting and healthy communication. Healing Journey program was designed by Dr. Alistair Cunningham of Princess Margaret Hospital.
In our sesson today we went through a deep muscle relaxation exercise which takes about 1/2 hour. We were lying on the floor while doing this and David fell asleep. Obviously relaxing for David! Good exercise though and we are supposed to practice every day. I think I can handle that.
Healthwise I am feeling good. The swelling in my abdomen is greatly reduced and so I am more mobile. I have started going out in the evenings with David when walking our dog Cyrus. I haven't been able to do this for several months.
Tomorrow I have an appointment in London with Dr. Bertrand. She is checking me out after 2 chemo treatments to ensure the chemo is doing the job it's supposed to be doing. She will also discuss the surgery which may occur about 4 weeks after the third chemo treatment. The timing for this may be the 2nd week of December or so. We'll know better tomorrow.
In our sesson today we went through a deep muscle relaxation exercise which takes about 1/2 hour. We were lying on the floor while doing this and David fell asleep. Obviously relaxing for David! Good exercise though and we are supposed to practice every day. I think I can handle that.
Healthwise I am feeling good. The swelling in my abdomen is greatly reduced and so I am more mobile. I have started going out in the evenings with David when walking our dog Cyrus. I haven't been able to do this for several months.
Tomorrow I have an appointment in London with Dr. Bertrand. She is checking me out after 2 chemo treatments to ensure the chemo is doing the job it's supposed to be doing. She will also discuss the surgery which may occur about 4 weeks after the third chemo treatment. The timing for this may be the 2nd week of December or so. We'll know better tomorrow.
Wednesday, October 27, 2010
My Adventures with Percocet
Tuesday was my very worst day yet. In order to get relief from the pain in my legs, feet and hands Dr. Califaretti prescribed Percocet. As some of you know this is a combination narcotic Oxycodone and non narcotic pain reliever Acetaminophen. My first pill on Monday night seemed to work immediately in the pain department but I knew something was up when I lost all my dinner. David cooked a lovely piece of salmon - what a shame it ended up in the toilet. I still managed to keep fluids down. At bedtime I took another pill and loaded up on Senokot and Colace (narcotics give you constipation - who knew?) No pain all night - that was great. By 6 am the pain was back so I popped another pill and some more who know what.....At 9 am I got out of bed and decided to have some breakfast. I was feeling rather nauseous and my Italian background dictates that I need to eat and soon. I also took some of my nausea pills which are to be used when the feeling hits. After my first round of chemo I didn't need any of these. I gobbled down bowl of something nearby - Apple Cinnamon Cheerios. Not the best choice but I needed something cold and sweet. That didn't stay long. Rest of the day was spent on the couch feeling very poorly and any attempt to drink fluid or eat something did not work out.
By the mid afternoon and feeling out done by medication I put in a call to Pat, my nurse coordinator. After she got the story she consulted with Dr. and got back to me within the half hour. I knew they could feel my pain.
They felt I was experiencing a side effect of the Percocet - nausea and vomiting. My most favourite of all the side effects. Rather than give me another prescription for either nausea or pain she asked me to just keep taking sips of water to stay hydrated and see what tomorrow will bring. I was all for that. I decided I could live with some pain instead of taking another Percocet.
By dinner time I could keep down some mashed potatoes and a bit of chicken. No more bouts of vomiting and I didn't feel so nauseous. However, the pain was back but I felt could persevere.
By this morning I am feeling my old self and the pain in the legs is decreasing all on its own anyway. No more Percocets!
By the mid afternoon and feeling out done by medication I put in a call to Pat, my nurse coordinator. After she got the story she consulted with Dr. and got back to me within the half hour. I knew they could feel my pain.
They felt I was experiencing a side effect of the Percocet - nausea and vomiting. My most favourite of all the side effects. Rather than give me another prescription for either nausea or pain she asked me to just keep taking sips of water to stay hydrated and see what tomorrow will bring. I was all for that. I decided I could live with some pain instead of taking another Percocet.
By dinner time I could keep down some mashed potatoes and a bit of chicken. No more bouts of vomiting and I didn't feel so nauseous. However, the pain was back but I felt could persevere.
By this morning I am feeling my old self and the pain in the legs is decreasing all on its own anyway. No more Percocets!
Tuesday, October 26, 2010
More news following chemo session 2
Throughout the weekend, I only had to deal with fatigue. The Gabapentin painkiller that had been prescribed was doing a nice job.
On Saturday night, Pat and Suzanne visited for dinner. We hadn't seen them in a few weeks so it was good to catch up and hear about their trip to the Netherlands and Germany. We may hear from them more often now that Rob Ford has become Toronto's mayor!
Also, thank you to Jill and Michael for dropping off the therapeutic goodies.
On Sunday, I felt pretty good and we had a nice visit in the afternoon with Katherine and Cam.
By Monday morning, my condition had worsened. The Gabapentin wasn't doing its job and I had pain in my hands, lower legs and feet. I called the hospital and they prescribed a new serious painkiller (Oxycodone). It has taken away the pain, but it has its own side effects - such as feeling nauseous all the time.
Friday, October 22, 2010
2nd Chemo Treatment
Wednesday's visit to the hospital for blood work and consultation with Dr. Califaretti went very well. All the blood counts were normal. Some issue with the liver but she expects this as the liver is working very hard. Will get back to normal after treatment ends. Oh and I have lost about 10 pounds. This is mostly from the fluid in the abdomen (ascites) and maybe some of my own weight due to a lack of appetite.
So the next day on Thursday I had my 2nd chemo treatment. This time around it went much smoother. My pre-meds contained additonal drugs to counter the effect of the benedryl and hydrocoritsone to counteract the effects of the Taxol from the last time. The effect on me is that I slept much of the time I was there. Sometimes the nurse had to wake me to check my vitals. I was very drowsy.
Corina and David were with me in the morning and it was a good thing they had books to pass the time. Mom came in the afternoon and I remember waking long enough to say hello and then passed out. Before long it was 3:00 pm and Mom was gone and David was back. I wasn't awake when Mom left. It was time to leave but I had to fully wake up first.
Today is Friday I feel good and energetic. Did some email, housework and cooking. This was a similiar experience last time as well. But what will the weekend bring ? I sort of crashed the last time. We shall have to see. Oh the hair thing....this morning so much fell out during my shower I had bald spots so I asked David to shear off the remainder at 1/4 inch. Much better. And no I am not going to show you any pictures. : )
So the next day on Thursday I had my 2nd chemo treatment. This time around it went much smoother. My pre-meds contained additonal drugs to counter the effect of the benedryl and hydrocoritsone to counteract the effects of the Taxol from the last time. The effect on me is that I slept much of the time I was there. Sometimes the nurse had to wake me to check my vitals. I was very drowsy.
Corina and David were with me in the morning and it was a good thing they had books to pass the time. Mom came in the afternoon and I remember waking long enough to say hello and then passed out. Before long it was 3:00 pm and Mom was gone and David was back. I wasn't awake when Mom left. It was time to leave but I had to fully wake up first.
Today is Friday I feel good and energetic. Did some email, housework and cooking. This was a similiar experience last time as well. But what will the weekend bring ? I sort of crashed the last time. We shall have to see. Oh the hair thing....this morning so much fell out during my shower I had bald spots so I asked David to shear off the remainder at 1/4 inch. Much better. And no I am not going to show you any pictures. : )
Look Good Feel Better
Mom and I attended a 'Look Good Feel Better' workshop this past week on Tuesday, October 19th. This was a great experience. Every person in cancer treatment were teamed up with a cosmetician and a box full of cosmetics and toiletries. I think this was worth about $300. It was just like Christmas.
These items are all donated by the CANADIAN COSMETIC, TOILETRY AND FRAGRANCE ASSOCIATION FOUNDATION. The products are name brand items like Estee Lauder, Yves Rocher, L'Oreal, Mary Kay, Avon, Clairins, etc. You get the idea.
The instructor described the process of facial care and then make up application. All the instruction is based on our condition such as no matter what skin type you were before treatment you are now 'dry and sensitive.' I have noticed this but thought it was welcome change from my oily skin.
Our cosmetician would then show us how to apply all various creams and lotions and potions in a clean and sanitary manner. How many of you stick your fingers into a jar of face cream? All too many of us I am sure. Should use a small plastic paddle. How often do you wash your brushes? Ha... I know you don't. I don't very often.
Then we would apply the concealer, foundation, powder and eyemake up in a clean sanitary manner. Much of this involved placing the damp type products on the back of your clean hand and applying with clean fingers. With a foundation smooth out the product with a clean sponge.
Anyway lots of good clean fun. And good advice. There was also another woman who talked about buying wigs and how to fit them properly.
Speaking of hair loss it is a lot like the leaves falling from a tree.... slowly first, then faster and all of a sudden there isn't one left on the tree. I am about 3/4 of the way. What a mess in the bathroom!
The ladies from work came to visit on Tuesday night. I was looking good! First time I've had makeup on for about a month which is so unlike me. I am resolved to put on make up everyday even if I am not going anywhere. You just feel better when you look in the mirror.
A great Chinese dinner and some wine made the evening quite enjoyable. Hope we can do it again soon!
These items are all donated by the CANADIAN COSMETIC, TOILETRY AND FRAGRANCE ASSOCIATION FOUNDATION. The products are name brand items like Estee Lauder, Yves Rocher, L'Oreal, Mary Kay, Avon, Clairins, etc. You get the idea.
The instructor described the process of facial care and then make up application. All the instruction is based on our condition such as no matter what skin type you were before treatment you are now 'dry and sensitive.' I have noticed this but thought it was welcome change from my oily skin.
Our cosmetician would then show us how to apply all various creams and lotions and potions in a clean and sanitary manner. How many of you stick your fingers into a jar of face cream? All too many of us I am sure. Should use a small plastic paddle. How often do you wash your brushes? Ha... I know you don't. I don't very often.
Then we would apply the concealer, foundation, powder and eyemake up in a clean sanitary manner. Much of this involved placing the damp type products on the back of your clean hand and applying with clean fingers. With a foundation smooth out the product with a clean sponge.
Anyway lots of good clean fun. And good advice. There was also another woman who talked about buying wigs and how to fit them properly.
Speaking of hair loss it is a lot like the leaves falling from a tree.... slowly first, then faster and all of a sudden there isn't one left on the tree. I am about 3/4 of the way. What a mess in the bathroom!
The ladies from work came to visit on Tuesday night. I was looking good! First time I've had makeup on for about a month which is so unlike me. I am resolved to put on make up everyday even if I am not going anywhere. You just feel better when you look in the mirror.
A great Chinese dinner and some wine made the evening quite enjoyable. Hope we can do it again soon!
Monday, October 18, 2010
Week of October 12th
This was a quiet week. Lots of reading, watching movies and staying put. Medication for pain ran out Tuesday and luckily I do not have any pain in my legs and joints. I pretty much felt normal and have energy which is ironic as this week was the period of time after chemo where I was most vulnerable to infection. I have been doing a little cooking but the kitchen is really David's domain right now. My mother has been providing welcome additions to my diet as well. Care packages of homemade chicken soup, gnocchi, homemade pasta, etc.
My hair is now starting to fall out. Oh joy.... My scalp is tender and if I gently tug at my hair then mittfuls of hair come out. My pillow at night is full of hair. I am prepared with my new wig, plenty of scarves and several chemo caps that were made for me by the spouse of a former colleague. Very thoughtful! Thanks Heather and Bill!
On Saturday morning I went to Hope Springs to take a Gentle Yoga class. All the participants are cancer survivors (or in treatment). This is the most exercise I've had in 2 months and it felt pretty good. Remember up to my first chemo treatment I looked about 8 months pregnant and walking was a major feat. Now I am looking more like 5 - 6 months. I have lost some of that ascites from my abdomen and it feels much better. Less pressure. Sleeping is easier as well. But I still have to remember not to do too much as then I get exhausted and need a nap. What a life.....
Next appointment at hospital is this Wednesday, October 20th. Blood work will determine if white blood count and platelets are at normal counts so that I can start the whole cycle again on Thursday with my second chemo treatment. I am confident all will be fine.
My hair is now starting to fall out. Oh joy.... My scalp is tender and if I gently tug at my hair then mittfuls of hair come out. My pillow at night is full of hair. I am prepared with my new wig, plenty of scarves and several chemo caps that were made for me by the spouse of a former colleague. Very thoughtful! Thanks Heather and Bill!
On Saturday morning I went to Hope Springs to take a Gentle Yoga class. All the participants are cancer survivors (or in treatment). This is the most exercise I've had in 2 months and it felt pretty good. Remember up to my first chemo treatment I looked about 8 months pregnant and walking was a major feat. Now I am looking more like 5 - 6 months. I have lost some of that ascites from my abdomen and it feels much better. Less pressure. Sleeping is easier as well. But I still have to remember not to do too much as then I get exhausted and need a nap. What a life.....
Next appointment at hospital is this Wednesday, October 20th. Blood work will determine if white blood count and platelets are at normal counts so that I can start the whole cycle again on Thursday with my second chemo treatment. I am confident all will be fine.
Tuesday, October 12, 2010
Thanksgiving Weekend!
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| Mom and I and John |
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| Only picture I could find with Franca (white shirt) |
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| 5th Ave. looking south. See the Empire State Building! |
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| 5th Ave. looking north |
Our Thanksgiving weekend at home was quiet. Lots of football on TV. David likes to watch college ball on Saturdays. I don't care too much. I prefer NFL but am not glued to the TV for 3 hours straight.....Just enough to see the good plays. What is with the Bills? Disgraceful!
Unfortunately, we had to miss Elaine's (David's sister) dinner on Saturday. The long car ride is just too uncomfortable for me right now. She lives in Toronto and it is an hour away. Hope a good time was had by all!
David prepared a great turkey dinner on Sunday. I tried supervising but was shooed out of the kitchen a lot. Mom and Dad came over and helped David get dinner on the table. The crazy thing..... no one snapped a picture. With all the phones in the room with a camera! We were hungry I guess!
Thursday, October 7, 2010
Week of October 4th
By Monday I had decided to contact my nurse coordinator Pat to see if there was anything I could do about the muscle and joint pain. It was excruciating and never let up. A quick call to the hospital and the triage nurse on duty in the Cancer Centre let me know that I could take Tylenol but to take my temperature first. It is important not to mask any fever. She also let me know she would ensure Pat was informed and that Pat would probably call. She did call and asked how the Tylenol worked. It really didn't do anything for me so she let me know she would talk to the doctor and probably call in a prescription for me.
Within hours a prescription was waiting at our local Pharma Plus and I started taking a medication called Teva-Gabapentin. It is used to relieve nerve pain and that it did by the time I went to bed that night. Finally, a good night's rest!
Of course, every medication has its side effects and this one is no exception. It makes me a little drowsy and fuzzy headed. No operating heavy machinery for now. But the pain has reduced about 80% and that is good enough for me.
Every day is a little better from the previous day. Appetite is a little better and the fatigue is a little bit less. I would not go so far as to say I feel normal but I think I have to come to terms about the new normal for now.
I am going out a little bit too. On Wednesday, David and I visited Hope Springs on Allen St. in Waterloo. Hope Springs is a not for profit cancer support centre. They offer a variety of programs for those with cancer and their caregivers. I got myself a lovely wig for when my hair falls out!
As you probably know chemotherapy is used to kill cancer cells throughout the body. The chemo drugs interfere with the growth and reproduction of cancer cells. This is good! However, they also damage normal cells that grow rapidly such as hair follicles, stomach lining, and blood cells. One of the side effects is lowered resistance to infection. This effect begins 7 days after chemo treatment and reaches its lowest point from day 10 - 14. After this the white blood count begins to improve and should reach normal levels before the next treatment. For me the lowest point is October 10 - 14. So if we discourage visitors don't think we don't love you!
Within hours a prescription was waiting at our local Pharma Plus and I started taking a medication called Teva-Gabapentin. It is used to relieve nerve pain and that it did by the time I went to bed that night. Finally, a good night's rest!
Of course, every medication has its side effects and this one is no exception. It makes me a little drowsy and fuzzy headed. No operating heavy machinery for now. But the pain has reduced about 80% and that is good enough for me.
Every day is a little better from the previous day. Appetite is a little better and the fatigue is a little bit less. I would not go so far as to say I feel normal but I think I have to come to terms about the new normal for now.
I am going out a little bit too. On Wednesday, David and I visited Hope Springs on Allen St. in Waterloo. Hope Springs is a not for profit cancer support centre. They offer a variety of programs for those with cancer and their caregivers. I got myself a lovely wig for when my hair falls out!
As you probably know chemotherapy is used to kill cancer cells throughout the body. The chemo drugs interfere with the growth and reproduction of cancer cells. This is good! However, they also damage normal cells that grow rapidly such as hair follicles, stomach lining, and blood cells. One of the side effects is lowered resistance to infection. This effect begins 7 days after chemo treatment and reaches its lowest point from day 10 - 14. After this the white blood count begins to improve and should reach normal levels before the next treatment. For me the lowest point is October 10 - 14. So if we discourage visitors don't think we don't love you!
Saturday, October 2, 2010
Day 2 & 3 after Chemo
Much of the weekend was spent on the couch. Side effects are kicking in. Fatigue, muscle and joint pains, etc. My head is aching but I cannot take anything. Can't call in to my nurse coordinator because it is the weekend. I am sure I can take some tylenol but don't want to yet. I will persevere.
I will spare you the details regarding constipation. My tastes buds are rebelling. Many things just taste lousy and flavourless. But I need to eat and make sure I have small snacks throughout the day. Don't forget to drink lots of fluids but no booze. Liver is already working overtime without booze.
Second day on the couch. Mostly experiencing muscle ache and pain in my lower abdomen. Had headache yesterday but this doesn't seem to be an issue today. Appetite is off and every thing tastes lousy. They warned me about this..... mostly a metallic taste. Even water.
I will spare you the details regarding constipation. My tastes buds are rebelling. Many things just taste lousy and flavourless. But I need to eat and make sure I have small snacks throughout the day. Don't forget to drink lots of fluids but no booze. Liver is already working overtime without booze.
Second day on the couch. Mostly experiencing muscle ache and pain in my lower abdomen. Had headache yesterday but this doesn't seem to be an issue today. Appetite is off and every thing tastes lousy. They warned me about this..... mostly a metallic taste. Even water.
First Day After Chemo
Friday, October 1st, 2010
Didn't sleep well that night but that is a side effect. Have to take my temp twice a day to check for fever (38 degrees) Must call in for instruction during business day. Or go to emergency on weekend. Yikes David bought a huge bag of masks if anyone looks like they are sniffling. Or maybe he will make me wear them....
Currently feeling a little flu ish.. slight headache that's all.. can't take anything..not that I want to. so many drugs in there right now.
First Chemotherapy Treatment
Thursday, September 30th, 2010
Oh joy...not....
Day started at hospital at 8:30. I had already taken some steroid prescription pills 12 hours and 6 hours before. Plus I had to take an anti nausea pill that morning. More nausea pills for home. They work well. No nausea yet. (fingers crossed)
Hooked me up to IV in a lazy boy type chair. I was given some pre-chemo drugs for nausea and Benadryl. Within minutes I started to feel drowsy from the huge dose of Benadryl. I also started to get ants in my pants and dancing legs. I couldn't close my eyes to doze and I felt like I had the spins from too much booze. Chemo wouldn't be started for another 30 minutes and I did not complain. I just thought ...ok this will subside....
Pharmacist came to explain my chemo drugs and talk about side effects etc. (more on this later) She went into great detail which just confused me but they are pretty accustomed to this so there is lots of paper. She said there are drugs to combat this jitteriness if I wanted. (she noticed by dancing feet) I said no. I am so tough.
Well the first chemo drug started and it takes generally 3 hours for the full dose. Within minutes my chest got heavy and I couldn't breathe. David said my face was starting to turn red. I felt a searing heat rise from my shoulders to the top of my heard. This was no hot flash. More like a f&%*ing volcano. Well thank God there are nurses all over the place (David was already running to get one) and they know this could happen to a percentage of first timers..... well one of them ran over and took the line off and gave me oxygen. Emergency call went out and within a minute they administered another steroid. The steroids help the body accept Taxol (chemo drug). Body doesn’t want it because Taxol kills cells. Obviously the pills were not enough. Now they know and adjustments will be made by the doctor. Doctor by the way (another woman) is great and explained a lot to us on Wednesday.
Anyway I had to wait another 1/2 hour to begin the Taxol and they started with small dosage working the way up to full. My mother was coming by at 11:15 to relieve David and I was so glad she didn't witness this.
All went well after this and no more funny stuff. The heebee geebees went away with the Taxol reaction. Imagine that. I was also no longer drowsy.
Second drug (Carboplatin) was piece of cake and only took 1/2 hour. Went home at 3:00 pm and felt pretty good. Just a little tired. Having a needle in your arm for that long is just freaky.
Symptoms and Diagnosis
This entry is intended to provide you with an account of symptoms that alerted me that something was wrong and the progression of a diagnosis by our health care system. It is somewhat long so grab a drink.
Early August there was a day at work where I experienced a sharp pain in my lower left side. It was quite painful and I decided to go home at noon to lie down. Pain was mostly gone by next day and I returned to work. Decided to call the doctor's office anyway to ask them to book an annual checkup. I was several months overdue and this was as good a time as any. Appointment was booked for October 14th. Busy office.
Life went on as usual. The only symptoms I recall is feeling bloated much of the time and my belly was expanded somewhat. Sometime early to mid August I recall that we played a round of golf at Puslinch and we walked the course. It was a hot day, one of many this past summer, and I recall complaining about the heat. Nothing out of the ordinary!
Most of the time I didn't have pain per se but I was bloated and gaseous. I made the decision I was becoming intolerant to some sort of food item and made some effort to remove wheat from my diet to see if anything changed. I studied up food intolerances and tried substituting for wheat. This went on for a number of days but nothing changed and I was getting larger and more uncomfortable.
On August 22nd we were scheduled to participate in a golf tournament. By now I was experiencing heaviness in the lower belly, walking was painful and looked 4 or 5 months pregnant! Oh joy.....There was no way I could do this even with a cart and I suddenly realized I needed to go to the doctor. Of course, it was the weekend so I went to the clinic. After some blood work, urine analysis, x-rays and physical examination they could not give me any diagnosis. There appeared to be some heaviness in the pelvic area and it was probably because I was constipated. I was given a prescription for some stool softener and an appointment for an ultrasound for August 31st, which was the next step.
We spent the following 5 days at Pat and Suzanne's cottage. It was during this time that I really came to terms with my inability to walk very far. We would go for walks and I would end up way behind of everyone and holding my belly. I couldn't wait to sit down again. Back pain began as well.
The ultrasound results were available very quickly and my own doctor called August 31st to tell me that there is a sizable tumour close to my ovaries. She was very sorry to be delivering this news via the phone but thought that I would want to know. She had also arranged for a CT Scan and appointment was set for September 3rd. She also arranged an appointment at London Health Sciences Hospital with Dr. Monique Bertrand, Gynecological Oncologist upon the recommendation from the Grand River Cancer Centre. Things started to happen very fast now. Both David and I were stunned as you can imagine and quickly had to come to terms of what this meant.
On September 7th we met with Dr. Bertrand. In her opinion, based on the results of all the diagnostic tests and her physical examination she was quite sure it was cancer. In the back of our minds we were still hoping it was nothing but we knew. However, to be 100% sure she requested a biopsy with a oncologist radiologist scheduled for September 17th in London.
She described the treatment plan for ovarian cancer which would begin as soon as possible. Good news is that I can do this in Kitchener at the Grand River Hosp. There would be 3 treatments of chemotherapy 3 weeks apart. Then she will do surgery to remove as much as she can. After this 3 more treatments to get rid of the remainder missed by surgery.
She didn't think there is one mass as originally thought but several smaller ones. All in the area of the ovaries. There was also a possibility of cancer on the peritoneum. This is the lining of the abdomen. Treatment is the same for both types of cancer.
This was all confirmed with the biopsy.
Physically, I felt fine as long as I was sitting. My belly had expanded quite a bit because of something called ascites. This fluid will reduce with chemotherapy. My regular clothes do not fit around the waist.
Dr. Bertrand called me at work on September 22nd to discuss the results of the biospy. She confirmed it was grade 3 ovarian and peritoneal cancer. Next steps was to send all test results to Grand River Hospital who would get in touch with me for a preliminary meeting.
So on September 29th we met with Dr. Califaretti, oncologist and my nurse coordinator, Pat to discuss my diagnosis and treatment plan in more detail. They were wonderful and caring. Any questions we had were encouraged and they were completely accommodating. Appointment for first treatment was set for the very next day @ 8:30 am. My journey is only beginning.......
Early August there was a day at work where I experienced a sharp pain in my lower left side. It was quite painful and I decided to go home at noon to lie down. Pain was mostly gone by next day and I returned to work. Decided to call the doctor's office anyway to ask them to book an annual checkup. I was several months overdue and this was as good a time as any. Appointment was booked for October 14th. Busy office.
Life went on as usual. The only symptoms I recall is feeling bloated much of the time and my belly was expanded somewhat. Sometime early to mid August I recall that we played a round of golf at Puslinch and we walked the course. It was a hot day, one of many this past summer, and I recall complaining about the heat. Nothing out of the ordinary!
Most of the time I didn't have pain per se but I was bloated and gaseous. I made the decision I was becoming intolerant to some sort of food item and made some effort to remove wheat from my diet to see if anything changed. I studied up food intolerances and tried substituting for wheat. This went on for a number of days but nothing changed and I was getting larger and more uncomfortable.
On August 22nd we were scheduled to participate in a golf tournament. By now I was experiencing heaviness in the lower belly, walking was painful and looked 4 or 5 months pregnant! Oh joy.....There was no way I could do this even with a cart and I suddenly realized I needed to go to the doctor. Of course, it was the weekend so I went to the clinic. After some blood work, urine analysis, x-rays and physical examination they could not give me any diagnosis. There appeared to be some heaviness in the pelvic area and it was probably because I was constipated. I was given a prescription for some stool softener and an appointment for an ultrasound for August 31st, which was the next step.
We spent the following 5 days at Pat and Suzanne's cottage. It was during this time that I really came to terms with my inability to walk very far. We would go for walks and I would end up way behind of everyone and holding my belly. I couldn't wait to sit down again. Back pain began as well.
The ultrasound results were available very quickly and my own doctor called August 31st to tell me that there is a sizable tumour close to my ovaries. She was very sorry to be delivering this news via the phone but thought that I would want to know. She had also arranged for a CT Scan and appointment was set for September 3rd. She also arranged an appointment at London Health Sciences Hospital with Dr. Monique Bertrand, Gynecological Oncologist upon the recommendation from the Grand River Cancer Centre. Things started to happen very fast now. Both David and I were stunned as you can imagine and quickly had to come to terms of what this meant.
On September 7th we met with Dr. Bertrand. In her opinion, based on the results of all the diagnostic tests and her physical examination she was quite sure it was cancer. In the back of our minds we were still hoping it was nothing but we knew. However, to be 100% sure she requested a biopsy with a oncologist radiologist scheduled for September 17th in London.
She described the treatment plan for ovarian cancer which would begin as soon as possible. Good news is that I can do this in Kitchener at the Grand River Hosp. There would be 3 treatments of chemotherapy 3 weeks apart. Then she will do surgery to remove as much as she can. After this 3 more treatments to get rid of the remainder missed by surgery.
She didn't think there is one mass as originally thought but several smaller ones. All in the area of the ovaries. There was also a possibility of cancer on the peritoneum. This is the lining of the abdomen. Treatment is the same for both types of cancer.
This was all confirmed with the biopsy.
Physically, I felt fine as long as I was sitting. My belly had expanded quite a bit because of something called ascites. This fluid will reduce with chemotherapy. My regular clothes do not fit around the waist.
Dr. Bertrand called me at work on September 22nd to discuss the results of the biospy. She confirmed it was grade 3 ovarian and peritoneal cancer. Next steps was to send all test results to Grand River Hospital who would get in touch with me for a preliminary meeting.
So on September 29th we met with Dr. Califaretti, oncologist and my nurse coordinator, Pat to discuss my diagnosis and treatment plan in more detail. They were wonderful and caring. Any questions we had were encouraged and they were completely accommodating. Appointment for first treatment was set for the very next day @ 8:30 am. My journey is only beginning.......
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